Ashlyn has taken a set back. While we were visiting our girls yesterday, Ashlyn had a spell where she desat. Her vent and oxygen needs were increased significantly. She had to be restarted back on the blood pressure medication. Her urine output is minimal and she is also becoming edematus again. We don't know why little Ashlyn is getting worse again. We really thought things were looking better. All we can do is continue to pray.