Tuesday, August 30, 2016

Brandon is 8 months old

Brandon turned 8 months on August 14th.  He weighed 17 lbs, 14 oz.  He is such a delight to our family.  He smiles so much and is so happy.

Brandon is doing good.  He is still working on perfecting his rolling over.  He can roll over he just prefers not to.  His physical therapist is working on that as well as working on strengthening his core so he can be strong enough to sit up.  He will get it, but I'm getting somewhat impatient as I want to see him beat spina bifida and not let it slow him down.

Brandon's personality is showing more and more.  He is a happy, easy going baby and likes when people talk to him.  In fact he will stare at someone as if he is waiting for them to talk to him.  When someone does he gives a big smile.  He's working on talking himself.  He's making more sounds (started mid to late August) and is making a "da da/ta ta" sound.  He is going to be a talker I can tell already.

He had his first dentist appointment on August 23rd.  All his 8 teeth are good.  The dentist said his back gums were puffy so he is working on getting more teeth in.  He loves to chew on anything and his hands are grabbing everything as well.  Loves his toys especially his green O-ball and his blue puppy dog.

He's doing better at eating baby food.  He likes oatmeal cereal with formula mixed in it along with a little baby food fruit stirred in.  He will eat a good serving of that.  He doesn't really care to eat baby food fruit straight from the jar.  It must be too tart or sweet for him because I get some really funny faces from him when I feed it to him.

Brandon is wearing 6-9 month size clothes and is in a size 3 diaper (wrote that so when I look back at my blog later down the road, I can remember all the little details).

Brandon is such a good sleeper!  He will sleep from 9:30 pm to around 8 am.  What a blessing he his!

Brandon will see his pediatrician next month (at 9 months) as well as the urologist.  We are still cathing Brandon 4 times a day.  It gets old having to do every day, but its something that has to be done.  Brandon sometimes has good days when 2 or 3 out of the 4 caths we get very little or no urine.  So that means he is sometimes emptying his bladder on his own.  We hope and pray that he will be able to empty his bladder completely every time all on his own again one day.  We have been told it could happen, but not sure what Brandon's chances are.  I continue to pray for a miracle.  We sure do love this boy!

Love his smile

Brandon loves jumping in this
Sitting in the Bumbo chair
He loves this green ball!

Saturday, August 27, 2016

Rachel and Haley start 2nd grade

Rachel and Haley started 2nd grade on August 22nd.  They will both be in life skills special education classes.  Rachel has the same teacher again this year.  Haley has a new teacher and she seems to be a great teacher.  We hope they will have a great school year and will continue to make progress.  Yes they are making progress.  Their progress is slow and it will be for them but whats most important is that my children are gifts from god and they are blessed!

Thursday, August 11, 2016

Rachel and Haley turn 7 years old!!!

On August 4th, Rachel and Haley turned 7 years old!!!  It doesn't seem that they are 7 years old already.  I still remember the day they were born.  It was a scary time not knowing what was going to happen to the sextuplets seeing that they were being born so early (22 weeks, 6 days).  We were blessed that our Rachel and Haley survived and are living life today.  We miss our Braden, Dallin, Ashlyn and Kaitlyn.  They are loved and remembered.  Happy Birthday to my 6 babies!!!

I did a little update on Rachel and Haley back in May.  Click here to read it.  So I will just add a little more about Rachel and Haley.  Rachel is about average size for a seven year old.  She is wearing size 6 and 6x clothing.  Rachel continues to be fed 100% from her G tube.  She is afraid to swallow and only tastes food.  Rachel's behavior is challenging and we are thinking she does have autism.  Haley is still very tiny for her age.  She can still wear some 3T clothing!!  She loves to eat and can eat a lot.  Not sure where she puts all that food.  Haley is learning to say some very simple words and we are seeing that she does understand what we are saying to her.  Her communication is improving a lot!   Rachel and Haley will be going back to school on August 22nd.  They will be in 2nd grade in special education life skills class.  Rachel and Haley do have many challenges due to their extreme prematurity, but they are continuing to slowly make progress.  We continually pray for Rachel and Haley and hope that they will be able to achieve more independence as they continue to grow and get older.  We love these girls despite the challenges!






We got Rachel and Haley a cake and sung Happy Birthday to them.  Haley ate a piece of cake and liked it.  Rachel was able to taste it.  Rachel still doesn't swallow food.  She only tastes it.

Friday, July 29, 2016

Persona Pizzeria Opening!!!

My husband along with his brother and two friends opened a wood fired pizza place called Persona on July 28th.  This is the first Persona pizzeria to be opened in Texas (and its close to our home).  If you are local in Houston here is the address: 9635 N Sam Houston Parkway #400  Humble, TX 77396.  Come by and try out this awesome pizza!

For more information about Persona check out their website at www.personapizzeria.com

We are so happy that this pizza place is finally opened.  It took a lot of work, but these guys got it done.  So proud of them!  Opening day was a success!!!

Ribbon cutting


Award winning chipotle chicken pizza
Famous wood fire oven.  Cooks pizzas in 90 seconds or less

Rachel with award winning pizza chef Glenn Cybulski during the pre-opening event
Kayla with her best friend
Us on opening day. Rachel and Haley were at summer school.

Tuesday, July 26, 2016

Brandon is 7 months old

Brandon is already 7 months old.  Each month goes so quickly!  On the 14th of July he weighed 17 lbs, 1 oz.  Also he is finally rolling over!  He took his sweet time, but he is doing it!  His physical therapist has been coming 2 times a week and that is helping him a lot.  He is behind physically due to the spina bifida, but he will get there.  He is such a champ in regards to teething!  He has gotten in 8 teeth within the past 4 months!  He doesn't even complain or seem bothered by those teeth at all!  He does chew on his toys a lot due to those teeth coming in!  He has been enjoying exploring and playing with his toys.

Brandon is currently wearing 6 month size clothing and his feet are slowly growing.  He can wear size 2 now though size 2 shoes are still a little too big.

He is eating some baby food, but he is not a big fan of it and also he is still trying to maneuver that tongue correctly.  He tends to push the food out most of the time.

He continues to be a very smiley little boy.  He loves to be talked to and will coo back.  He loves to watch his sisters and he adores Kayla.  He is observant and likes to watch and see what is constantly going on.  Our house is busy so he fits right in.

He is such a fun loving little boy!  He melts my heart each time he smiles or laughs!  He is a mommy's boy for sure.  We are so grateful for this sweet boy!

Look at all those teeth!

First 4th of July
Eating baby cereal

Wednesday, June 29, 2016

Brandon is 6 months old

Brandon turned 6 months old on the 14th.  He had his 6 month check up the same day.  Here are his stats:

Wt: 16 lbs, 5 oz (25th %ile)
Length: 25.75 inches (10-25th %ile)
Wt/Lt: 50%ile
Head circumference: 44.5 cm (75-90th %ile)

He is growing well.  His head circumference is coming down on the growth chart.  It appears he will be on the shorter side for a boy.  Thomas is short so it appears Brandon got a lot of daddy's genetics.
Brandon sure has been working on getting his teeth in.  He got two teeth last month, but now he has has 6 more coming in!  He now has all 4 in on the bottom and all 4 are coming in on the top.  He doesn't seem to mind all those teeth coming in.  He's not fussy.  He has been chewing on anything he can a lot lately and that is why.

We started Brandon on baby foods on the 17th.  I started him on baby food squash first, but he didn't really seem to like it much.  I have tried carrots and rice cereal and he seems to like those better.

Brandon had a follow up bladder function test on June 6th.  At that appointment it was discovered that he had a bladder infection.  The test was not done due to the infection.  Brandon was put on an antibiotic and on June 9th the test was done.  Unfortunately the bladder function test did not show a good result.  It was found that Brandon was not emptying his bladder completely and that is what most likely caused his bladder infection.  We didn't get to talk to the doctor due to he was in surgery.  We were sent home having to cath him every 4 hours (4 times a day).  We were devastated with this news as we thought his bladder was working normally and that there would not be any issues with that later.  Well we were wrong.  Things changed and we are not sure why.  I was so upset and still am.  It breaks my heart that my son now has to go through cathing everyday.  I'm also upset that we didn't get to talk to the doctor.  I felt we were just thrown into cathing with no explanation.  We did as we were told and started cathing him 4 times a day, but due to the cathing,  Brandon ended up getting a second bladder infection two weeks later.  We are trying to determine if he can be cathed 3 times a day or if we have to continue with 4 times a day.  The least amount of cathing we can do the better since Brandon is prone to bladder infections.

Despite all he has been going through the past month, he is such a happy guy!  He is making progress, but he has yet to roll over.  He is getting physical therapy once a week and she is working on getting him to roll over.  He will roll over and he will continue to make progress, but it will be a bit slower and on his own time. We love our handsome little guy!  He is a special little boy!

June 14th happened to be flag day so that is why I took pictures of Brandon with the American flag.

These pictures are in honor of Father's day.

Looking up at daddy

Sunday, June 12, 2016

Last Day of school and preschool pictures

Rachel and Haley's last day of 1st grade was on June 2.  They had a great school year in 1st grade!  Haley's teacher is leaving so Haley will have a new teacher for 2nd grade.  Rachel will have the same teacher.  Both Rachel and Haley will be going to Summer school this Summer to help them with continued progress in life skills.  They have grown since their first day of 1st grade!

Rachel's 1st and last day picture

Haley's 1st and last day picture

Kayla finished another year of preschool as well.  She has one more year of preschool since she doesn't turn 5 until December.  She is looking forward to going to Kindergarten, but she's going to have to wait one more year.  My baby girl sure has grown as well!

Kayla's 1st and last day picture