Rachel got her cranial shaping helmet (starband) a week and a half ago. She wears it 23 hours a day and is adjusting to it ok. Rachel will be wearing this helmet for about 4-5 months. As long as that is, I am focusing on the outcome - a round head. We decided to get Haley a cranial shaping helmet as well. We want her to have a round head as well so we decided this was the time to get it. If we didn't get it now, there was no turning back. Haley should get her helmet in a couple of weeks.
Of course we got Rachel a pink helmet
Getting the girls to eat more by mouth has been challenging. Rachel is very slowly accepting tastes of baby foods. We work with her everyday, but its going to take a lot of time and patience. She still requires the use of her g-tube to be fed. As for Haley, she is doing ok with the baby foods. She is still a little hesitant when we feed her, but she is catching on and getting better each day. She is still not consistent with her bottle, so we are still having to use the feeding tube off and on.
The girls sure do get messy with their baby food feedings. Gotta love sweet potatoes!
Another challenge we have is trying to keep Haley's glasses on her face! She likes to pull them down and put them in her mouth and chew on them. The frames on her glasses have little teeth marks where she chews. We know when she is quiet, she is chewing on her glasses. We just keep putting her glasses back on in hopes they will stay on longer than a couple of seconds.