Thursday, August 27, 2009

Today's News

It seems like a lot of stuff going on with the girls. So here is the update. First of all Ashlyn got an update ultrasound of her head. The ventricles had gotten bigger, but that was before they got out 4 cc's of fluid. That is a lot of fluid for her size. We would assume the ventricles had decreased after that. I'm glad they are able to get the fluid out by doing spinal taps versus us having to get a neurosurgeon involved. That could still be the case, but so far so good. The protein levels in Ashlyn's spinal fluid is very good. Protein levels are usually high with a grade 4, but not Ashlyn's. That is very encouraging. Rachel is doing better with her blood pressure. They suspect there is a little clot where her PICC line was removed that is infected. She will have to be on antibiotics for up to 6 weeks. That is ok as long as it will help her. Haley is doing good. She is basically right now just feeding and growing. Her latest head ultrasound showed an improvement with the grade 4 and the other side continues to have an unchanged grade 2. So all in all things are looking good. We continue to pray for their healthy to improve. We are grateful for the miracles they are.

12 comments:

  1. Amanda and Thomas, I am so happy with the news! I keep checking for updates and I am confident that the girls' health will continue to improve. Rachel, Ashlyn, and Haley are strong and will go home with you. Everyday their chances improve and is one less day that you will have to wait to take them home. Please let me know if there is anything I can do to help you. My love and prayers for your family continue stronger than ever. Hang in there, God is with you.

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  2. What wonderfully encouraging news. Thanks for keeping us updated.

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  3. poor babies!
    prayers are needed

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  4. You are going to have MANY MANY ups and downs with babies this premature, especially multiples. Just take it one day at a time. It is going to be an uphill battle, for many many weeks. Hang in there...

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  5. Thank you! i love to hear how your/our babies are doing. (i feel like they are part mine) i get alarmed when there isn't an update, but that's probably the old gramma in me coming out! i am so hopeful for you all.
    love, Erma

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  6. I'm glad to hear the encouraging news!

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  7. I was worrying because there hadn't been an update. It sounds like the girls are holding their own and slowly making improvements.

    They and you remain in my prayers.

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  8. Two of my three fought quite a few infections, some of them nearly taking their lives (had at least 5 phone calls during the middle of the night to rush there, they weren't sure if they'd make it). For our son it was the gravest, there was finally a drug from Canada (5FC) that they gave him (after gent/vanc/epi/etc.) that worked.

    Continued prayers for your girls and the family, the NICU course for such early preemies is a hard road but having strong faith definitely helps you thru.

    Jamie

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  9. I am very happy to hear that the babies are growing and getting healthier.

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  10. Hurray for low protein levels in the CSF for Ashlyn, better blood pressure for Rachel, and the feeding and growing for Haley! I hope they continue to have those little improvements that are so encouraging!

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  11. Prayers and best wishes to your kids.

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  12. Our 25 weeker has hydrocephalus from the NICU/preemie experience. One thing I do have to say, while hydro stinks he is FAIRLY healthy. Amaizing what little blessing comes our way!

    preamturitywithlove.blogspot.com

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