Sunday, November 1, 2009


Today started early with a call from our nurse practitioner Kim, who is very kind and caring. She called around 5 AM letting us know that Haley has an infection from her PICC line. Haley still had the PICC line for the TPN that she is still getting. Haley's PICC line was infected with yeast, the very same thing that our precious little Ashlyn initially got infected with. The good thing about it is that because of two wonderful and observant nurses Brandi, and Kodi it seems it has been caught early enough to treat, unlike Ashlyn. We are so grateful to Brandi and Kodi for being the kind of nurses they are. They are extremely good with our girls, and they are very good at what they do. They are not 100% sure yet if it is yeast, they will have a microbiologist look at it in the morning. They seem pretty confident that it is though. We just returned home from the NICU and Haley seemed just fine. They have put her on an anti-fungal medication called amphotericin. It is a terrible drug for the kidneys, but they are monitoring her closely. We spoke with Dr. Thompson this evening about the yeast, and she seemed upbeat about it. She said the signs look promising for Haley. Haley did not have to be re-intubated, her O2 requirements have not gone up, she seems to be more active since they started the medication. Those are good indications that the yeast has not spread through out her body. They will do different tests tomorrow to see if that is true or not. We hope they have indeed caught it early enough. We also pray that the amphotericin medication does not destroy her renal function. She has already had her issues with her renal function, we don't need any more. Thomas was able to give her a Priesthood Blessing this evening for this issue. We feel confident that she will be ok, and that they will not have to give the anti fungal medication for very long. I was able to hold Haley tonight and she did just fine in my arms. I adore this precious little girl, she is such a sweet little girl.

Rachel seems to be on cruise control thus far. We hope that continues, we don't need her to get any yeast in her blood or any where else for that matter. Thomas was able to hold her this evening. She seemed to do just fine for him tonight. The last time Thomas held Rachel she was very agitated and that made Thomas a little nervous, he couldn't get her to calm down. Tonight was better for him, I could hear him singing I am a Child of God to her and He got a little emotional as he was singing to her, it was cute. I truly love and admire Rachel, she is such a beautiful little girl. We are proud of both our sweet girls, they continue to bring us such joy and happiness. We continue to trust in our Heavenly Father. We know that Heavenly Father is in control, he will always do what is best for all involved. He will not do anything that is not for our good. He loves us so very much, he will not allow us to suffer any more than is necessary for our growth and spiritual development. I know from first hand experience that He loves me, that he has been there for my family every step of the way. I know that I have a lot of growing to do, and I am grateful for the greatest tutorer (our Savior) who has and continues to guide us along.

Haley with her teddy bear

Rachel Sleeping on her side


  1. oh dear ! be strong amanda and thomas, i know that haley will pull through this......
    lots of love and prayers

  2. Praying for you all and that Haley recovers quickly to get off the meds

  3. Poor thing! I hope and pray along with everyone else that this will pass quickly!! Your poor babies have suffered so much, I want so much for you to be able to take them home. Reading about how Thomas sang I Am A Child of God made me cry! I sing that to my little one all the time, and when she was younger sometimes that was the only way I could calm her down.
    You are both so sweet and wonderful, your girls are so lucky. I hope to hear better news about miss Haley in the coming days!

    Praying for you always,

    Christina McKinney

  4. I'm sorry to hear about Haley's infection. We will pray extra for her. How wonderful that her nurses caught it so quickly. I am so glad she was able to get a Priesthood blessing. Hang in there. Big Hugs to all.

    Much Love,

    The Halls (W,E,W & B) KW1

  5. I am so sorry to hear about little Haley. I'm glad Thomas gave her a Priesthood Blessing because it will help her with getting over this infection. She is now 5 pounds and stronger than ever, this helps too. I am very happy to know that little Rachel is in "cruise control." What a strong little one! The pictures are precious and both look cuter than ever. I trust that God will continue to pour blessings over your family. Love and prayers, Claudia

  6. your positive attitude and constant, consistent faith are an absolute inspiration to me and all parents. you are living in the palm of God's hand, as are your beautiful little children. blessings and love to you. your strength is more than i can fathom.

  7. Frank and I pray for you and your family every day. We will add a special prayer for the Lord to remove the infection, no matter what it is!

    Virginia and Frank

  8. my first thought - OH NO!
    i am so grateful for our good - no great - nurses. they are truly a blessing in the babies lives.

    i pray for you to get good news tomorrow...

    love, Erma

  9. I'm sure Ashlyn's nurses were doing the best they could to treat Ashlyn when she had her yeast infection.

    Sorry, it almost sounds like a backhanded comment about Ashlyn's nurses not catching the infection in time.

  10. I've come to your blog via another one. Reading about Haley reminds me of our little Emma. She also developed a yeast infection due to the PICC line. After blood cultures they determined it was Candida Albicans. She was treated with Fluconazole and Amphotericin B liposome, which we were told was easier on her liver than the regular Amphotericin. She was on meds for the infection for almost a month. I don't know that any of this information helps, but I thought I would send it your way. After spending nearly 6 months in the NICU we found any information offered was of great help. Prayers being sent up for your sweet family.


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