The Good and The Bad

It seems like all the days are blending together lately. Today was a pretty good day for two of our little girls. Ashlyn's health continues to deteriorate, she is struggling to get the oxygenation she needs to sustain life. It isn't critically low just yet but seems to be creeping that way. She has so much edema (fluid) that it is getting into her lungs. She seems to be going into renal failure as she has stopped urinating completely. We continue to ask the Lord to do what is best for her. It is his will not ours as hard as that may be. It's extremely painful to see her struggling, it's also very hard to except that she may pass very soon, but I know that what will happen is for her good. Haley did really well today. She was down to 25% Oxygen, with all her vitals stable as well. She has no idea what is going to happen to her tomorrow. She will have surgery tomorrow afternoon to correct the obstruction in her small bowel. We hope and pray that the surgery goes well and that the Lord will guide the surgeons hands during the procedure. We also pray that they don't find anything worse than what they are expecting when they open her up. I know that she will be in good hands, Dr. Bloss is a great guy and a great surgeon. He has a famous line he says every time he has done a procedure on our girls "I will take care of her like she was my own. I know her from the inside out". We definitely appreciate Dr. Bloss and his excellent skills. We pray that our Heavenly Father will guide and direct him tomorrow during the surgery. Rachel seems to have dropped her blood pressure a little today, the Doctors don't seem to think much about it. I hope she isn't coming down with another infection. As a mom, my intuition suspects she has another infection from her central line. Her Oxygen requirements have been up a little more today than they had been, but that could be because of some of the pressure changes that Dr. Gee has made on her ventilator. He is trying to wean her down little by little. I hope she can be placed on a C-Pap sooner than later because it is much better for the lungs than the ventilator. It has been a good day and a bad day as well. The good day comes because Rachel and Haley seem content and stable. The bad day because Ashlyn seems like she is slipping closer and closer away. It breaks our heart to think she may not be with us much longer, but all we want is what is absolutely best for her. We continue to move forward and trust in an all knowing and all powerful Heavenly Father. We know that God is in control, He will do what is best for us like He always has and He always will.