Another day down and not sure how many to go before we can bring the girls home. We are excited for that day when it comes. Haley continues to struggle with her obstruction in her small bowl. She was a little more distended today than yesterday. They have a tube in her gut to suction out the air that builds up. They are waiting to clear up the infection she has before they open her up and fix the obstruction. She has had a relatively good day despite that. When we got to the NICU this afternoon her eyes where wide open. She is so cute. Rachel seemed to have a great day as well. She has had several good days in a row now which we are so grateful for. They were able to wean her ventilator pressures a little more today. We hope and pray she can come off the vent very soon, and onto the c-pap. Our sweet little Ashlyn continues to fight the good fight. She has had a better day today in terms of urinating more. She has a stable heart rate and blood pressure. Her O2 requirements were able to come down again today as well. The bad news is that her head ultrasound showed increased size of the ventricles in her brain. The doctors say they can't do anything about it until she recovers from the illness that currently is upon her. She is so fluid overloaded that there is no way they could do anything. We continue to worry and stress about her and her health. We constantly ask the Lord with guidance in what we can do for our precious little Ashlyn. I know that God our Father will guide us to know what questions to ask the doctors and what things we can do to help Ashlyn. I know that as we do our part in learning and researching things that the Lord will help us to know what questions or suggestions we can ask and make to the physicians taking care of our girls. So overall the girls seemed to have a good day. We are so thankful for the good days. It is difficult at times to go to bed and sleep while we know one of our girls has had or is having a bad day.
Haley looking so cute
Rachel sure has a lot of brown hair
I know it must be so difficult for you when they have these challenges. Praying for your girls and also for you.
ReplyDeleteThey are true miracles! We'll keep praying...you stay strong!
ReplyDeleteThe girls are looking so chubby! I'm amazed on how much they change in just a few days. They are beautiful! Haley's cheeks are so cute! Rachel's hair is growing fast, I love that color! Rachel is doing a great job with her progress, and after the surgery Haley will do as well. Continue to ask the Lord to guide you in what you can do for little Ashlyn and He will help you with that. Amanda and Thomas, you are beautiful people. My love and prayers are with you. Claudia
ReplyDeleteSuch cuties! Thanks for including the pictures of the girls. We continue to think of you and pray for you each day.
ReplyDeleteI love little ones with lots of hair! Such sweet babies :) We'll be saying extra special prayers for little Ashlyn as she is fighting her problems.
ReplyDeletePraying for you always,
Christina McKinney
Wow! Haley and Rachel almost look chubby! That's so great! We know it's not all about size, though, so we'll keeping sending prayers and positive thoughts your way - along with some extra brilliant ones to the doctors. ;)
ReplyDeletethe pictures of Haley and Rachel are adorable! they are doing so well. Ashlyn will be all right too. what beautiful little blessings! Love, Erma
ReplyDelete