Tuesday, December 29, 2009

There is Light at The End of The Tunnel!

Rachel got rid of the CPAP today and was put on the nasal cannula. We were so happy to see her beautiful face without the CPAP tubes. Rachel was so much happier and comfortable. This is the 3rd try on nasal cannula and we hope that the third times a charm. We are worried that her airway may not be strong enough yet and she will have to go back on that dreaded CPAP or worse have to have a trach. We are going to be optimistic though and believe in Rachel. We know she can do it. Rachel is 2 pounds heavier than the previous time they tried her on the nasal cannula. She has been growing better the past month. The next 24 hours will tell if she will be able to make it on the nasal cannula or not. Please pray for her!

Rachel on the nasal cannula again



Haley is doing well. The occupational therapist worked with her again this morning on taking the bottle, but Haley was sleepy and only took 2.5cc. They will continue to work with her and hopefully they will find the time when she is awake. They will also start working with her 2 times a day. The neonatologist Dr. Abrams mentioned to us today something we have been waiting to hear since they were born. He said that he thinks Haley may be able to go home in a couple of weeks. This is the first time the doctors has ever given us a time frame of when Haley may get to go home. We are so excited and a bit nervous as well. As the next 2 weeks go by, we will get a better idea if she will be coming home that soon or not. She still needs to work on taking formula from a bottle. We hope she will catch on quick and master it well.

Haley looking so angelic

28 comments:

  1. I am so happy to hear Haley will be home soon- keep doing a good job, Haley! And prayers for Miss Rachel- there are lots of us praying for the nasal cannula to work out will for her.

    They look so adorable. I am so happy to hear the good news.

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  2. What wonderful news for both girls! Rachel is in my prayers and I am so excited to hear Haley is on her way out of the hospital!

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  3. oh my goodness !! that post had me in tears !! such wonderful news !!! first that rachel is on the nasal cannula and secondly HALEY MAY BE HOME WITH YOU SO VERY VERY SOON !!!!!!!! fantastic !!!!!! it will be scarey but i know that you are going to be the most amazing parents your two little girls could ever wish for ! kindest thoughts and strongest of prayers, shirley....

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  4. This is very good news indeed. And we are praying for you! I love seeing their beautiful faces.

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  5. Wow that is wonderful news!!!! I am betting that Rachel will be not too much further behind!

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  6. Wonderful news for Rachel and Haley. I can see 2010 is going to be a great year for your family. Keep up the great work Rachel and Haley you will be home before you know it. Your girls have such beautiful chubby little faces. :)

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  7. So happy to hear your good news. The girls are looking so beautiful and chubby:-) Praying that we are still on nasal cannula this AM

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  8. My name is Haley too and my younger sisters middle name is Rachel. I am sending prayers for your two beautiful little miracles to make these tough days a distant memory and be home with you both soon.

    <3 Keep growing and getting stronger little ones!

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  9. What grand news. Prayers indeed are heard and answered. Thank you again for sharing your story. Even though you don't know me I hope to continue to hear about the girls through your blog long after they go home. Your story is a blessing to me.

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  10. I just got goose bumps reading your post! Eating is the last step before they get to come home! Praise God! I will continue to pray for your beautiful angels!

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  11. How wonderful!!!! I will pray harder for Rachel, but I know that sooner or later she will be mature enough to breathe without any problems. It's just a matter of time. She is such a fighter and will do just fine. I'm happy to see her beautiful face without the tubes. She is so pretty!

    I knew Haley was about to go home!!!! I'm so happy to hear that! Her progress is so amazing, I knew it was about to happen! I love the picture, she does look angelic.

    Both precious angels continue to be in my heart, thoughts, and prayers. Love, Claudia

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  12. That is such great news!! I pray for your family every day! I am so glad that everything is going better for your beautiful daughters!!

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  13. So exciting! Praying for you all.

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  14. Oh my goodness, great news on Haley. Thats very positive and exciting to hear I am sure. I will continue to send prayers your way. Both girls are absolutely adorable.

    Love,
    Michele Wallace

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  15. Wow! I'm so excited that Haley is so close to being home!! And trying Rachel on the cannula again is a step in the right direction. I really hope she's able to stay on it! The girls are looking beautiful, as always :)


    Praying for you always,

    Christina McKinney

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  16. YEAH!! YEAH!!! YEAH! What wonderful new for you guys and I remember hearing those words.."going home' and getting so excited and nervous and everything else.

    I hope that Haley and Rachel continue to grow and develop and come home. We will pray that Rachel does well on the nasal cannula and does not have to go back on the CPAP.

    As a side note: One of our daughters Avery was still not taking a bottle but her sister had been home for awhile so they let her come home with an NG tube it was a little more work but it was wonderful to have her home after a few months she got to have it out. So maybe Haley will get to come home before she is completely eating a whole bottle :)

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  17. sounds like giant steps to me!! such good news! how i pray that Haley will learn to love her bottle and Rachel won't have to look at a cpap till she is at least 80 years old!!

    i am so happy for you all! Home sounds so good. that is what we are all praying for is their journey to their own room in their own house with the parents who love them so dearly.

    Way to go girls!

    love continued!
    Erma Carlisle

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  18. Keeping my fingers crossed for Miss Rachel and her O2! And, my, Haley does look angelic!

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  19. You are continually in our prayers! The girls are precious. I hope you do get to bring them both home soon.

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  20. Praying for your little miracles! Hoping 3rd time's the charm. She looks wonderful on the cannula!

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  21. How exciting, such great strides for both girls!! I continue to pray for them both and their progress!!

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  22. That is such great news about Haley. I am sure her sister will be joining her soon. I have been praying for you guys.

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  23. What wonderful, amazing news! I am so happy to hear this! God has truly blessed you with two amazing little girls - how spectacular that they will be going home so soon! I also have faith that little Rachel will be able to stay on nasal cannula and not have to use a trach. I have faith in her and in God!

    God bless you for a wonderful 2010!

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  24. WOOHOO for room air and nasal cannula!! They are such cute lil chunky monkeys!!

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  25. We are so excited about all the progress being made by your sweet little girls. I bet Grandma and Grandpa were so excited to finally meet them! Prayers continue from snowy, cold Salt Lake City!

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  26. What a blessing! First time I have commented. Your babies are precious and have come such a long way!!!

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  27. What great news. Keep up the good work girls. Happy Rachel is off the cpac and hopefully for good this time and Miss Haley is almost at the end of her hospital stay. YEAH. Soon she will be home in her own bed how exciting for you all.
    Thanks for continuing to share you wonderful story of faith.

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