Mommy holding her beautiful girls
Rachel is such a sweet little girl. She loves to look around and watch everything around her. She is an inquisitive little girl. Rachel has only been home 3 days and has already made her first trip to the ER. We had to rush Rachel to the E.R. last night because her g-button in her stomach was accidentally pulled out. So we took her back to a familiar place - Texas Children's Hospital. We had to take her to the ER to get it replaced since the hole can close up fast. This visit to the ER was actually one of the quickest visits we have ever made. The button was replaced without any problems. Rachel was a trooper through the whole thing. Hopefully we won't have to go again, but if we do we are grateful to have Texas Children's Hospital.
Rachel
Haley is strong willed and feisty. She knows what she wants and usually gets it. She has attitude. She is strong as well. She is able to push her feet against the ground when we hold her up. Her head control is improving. Haley continues to sleep early in the evenings and wakes up pretty early in the mornings. We try really hard to keep her awake during the early evening hours, but to no avail. She just sleeps through everything. I think she has gotten a little better sleeping at night since coming home from the hospital for the second time. With time her sleeping at night will get better.
Haley enjoying the swing
We love our little girls so very much. They continue to grow and seem to enjoy being home much better than the hospital. We hope and pray that they will be able to develop and overcome the challenges they face physically and neurologically. We will have many different people working with them. We know that what will happen with our beautiful girls will be the will of the Lord. Heavenly Father will be there to help our little girls through their physical challenges. We are grateful to know that our Heavenly Father will do what is best for Rachel and Haley in their lives.
They are beautiful! And I recognize the elephant outfit! Maya was wearing hers the other night!!!
ReplyDeleteAmanda,that is a beautiful pic of you holding the girls they look so peaceful and sweet and you're just glowing with happiness awww...I'm glad to hear that things are going well..I love how you dress the girl's they look so darn cute.
ReplyDeleteBest wishes always,Lauren
So, so cute. I love hearing about their little personalities, so fun!
ReplyDeleteAmanda, my oldest had his days and nights confused. We tried and tried to keep him awake and all it did was make him miserable. When my twins were born we just let them figure it out. And they got their days and nights straight just as soon as he did. I don't believe that we can force the issue. If you keep nights boring, little light, no stimulation, and the days interesting, lots of activity, talking, some music, guests, etc, she will want to be awake for the fun. My youngest never seemed to have his messed up, I guess I just got lucky there. I co-slept with him though, that made a difference, but I can imagine that you couldn't do that with the girls with all the tubes, etc. Do you have them in your room with you at least? That might help. Regardless, she will get it eventually, hang in there.
ReplyDeleteI remember the E.R. visits when my son's g-tube button fell out. We were told that the hole can begin to close up within 20 minutes of it coming out. After several visits, we were taught how to put it back in which is a fairly easy procedure. My husband and I are old pro's at it now. One thing my husband does regularly is that he rotates the button around and checks to see if the bulb needs water (or air if that what you use) and can tell if the button seems loose. This has saved us many E.R. trips. Families that we know change the g-tube button monthly, but we change it when it falls out. I do not want to mess with it if it is working alright. Good luck with the g-tube and caring for the girls. I only had one and know it is alot of work. We did not have anyone to help us and we also had a 5 year old and a 10 year old who we did not want to change their routine or miss out on their daily activities. If you can get help, with you there supervising, take it.
ReplyDeleteIf there's anything we can do for you just give us a call. We can't wait to see the girls!
ReplyDeleteAmanda and Thomas, the girls are growing cuter every day! They look so happy at home, and the pictures show that. At home they appear to be more alert and developing well. I'm very happy they are finally there. Sleep every minute you can and slowly things will settle down. The many people who will be working with them will help the girls develop and reach their potential. I continue to send lots of love and prayers for all of you.
ReplyDeleteLove,
Claudia
Wow! What memories! Congrats. The girls look like they will keep you on your toes. I really like the picture of Haley with her eyes open. We rarely see that in any of the pictures you take.
ReplyDeleteGood luck with them. May be visits to the ER recede into the background.
I've followed your blog for a long time and am happy to see both girls at home. I have a 4 yr old with a g-tube (she got hers at 4 months old) so I know all of the struggles with that. Some advice that was given to us and I'll pass on - learn to put them back in and change them at home. It's SOOO easy and saves a trip to the ER. If you ever have any g-tube questions feel free to ask. God Bless you all!
ReplyDeleteI love, love, love the picture of you with both the girls!
ReplyDeleteSo glad they're both home with you!
ReplyDeleteMy little boy is a tube baby, as well. After making a mad dash to TCH the first time his came out, we quickly learned how to put it in ourselves. It saved us a few panic filled nights! The thought completely grossed me out at first, but it really is easy to do. We always keep a spare with us in his diaper bag, just in case! The girls are precious, as always!
ReplyDeleteMissy
Darling pictures! precious babies. beautiful Mama.. Handsome Daddy... what more could you hope for?! soo glad they're home. all is well. All is well, a few adventures ahead, but i know you'll all make it!
ReplyDeletelovies,
Erma, Midvale Utah
What beautiful girls ! True blessings. Glad they are both home now.
ReplyDeleteI am so happy both girls are now home with you. They are absolutely beautiful! May God continue to bless you all.
ReplyDeleteFirst, I just wanted to say,I'm so happy for you that you get to have both of your beautiful, precious girls at home. They are just dolls!
ReplyDeleteI hope you don't mind me asking questions, I'm just curious if the g-button is something that Rachel will have for the rest of her life, or is it something that can be removed eventually? Will her lungs eventually get stronger and better so that there isn't a risk of aspiration? Sorry, I've never known anyone else whose dealt with these things and I'm ignorant when it comes to such things.
Anyway, congrats on your little ones being home! Thanks for always posting pics, I can't get enough of their cuteness!
i love the picture of you holding your girls. yeah! they are home together!
ReplyDeletei am so happy for you, even though i dont know you.
good luck with sleeping ;)
Happy 7 months!!!
ReplyDelete