Thomas and I have decided to get away for a few days. We have a good friend who suggested that we go and take a break from everything that has been going on the past few months. She provided us with airline tickets to do so. We are so grateful for her and all that she has done for us. I don't think I have met a kinder person than this friend of ours. She truly is an amazing individual, who has been at our side through all the struggles we have had the past six months. We love and cherish her and consider her a true friend. We will be having fun in Los Angeles/Anaheim California. We plan on going to Disneyland and doing some sight seeing. Thomas served his mission in Anaheim and he is looking forward to seeing some old friends and the places he served. It is hard to leave the girls, but we know they will be in good hands as we are gone. We plan to enjoy this time together and relax!
Rachel continues to take steps forward toward her progression in coming home. She had her last dose of antibiotics last night, finally got that darn IV out of her. She has had the IV now a total of ten days. They had to put several in because she kept knocking them out. It took them several attempts each time they had to put a new IV in. I am sure if she could talk she would say I am happy that IV is out for good. Rachel continues to gain weight as well, she is now 9lbs 14.6oz. She is becoming such a big girl. She also had the amount of oxygen that she needed reduced to 1/8 of a liter, but she was starting to breathe a little heavy so they put her back to 1/4 of a liter. We are so thankful that she is moving in the right direction. She is such a little princess. We just love and adore her more than words can express.
Our little Haley is also pushing forward in her progression towards returning home. We were worried about her weight, because she had dropped almost everyday she has been back in the hospital until last night. We know they didn't feed her for a little while due to her belly being distended. They wanted to make sure that she would be ok before they started her feeds again. They have started them and are trying to get her back to what she was on when she was home. They are not rushing her because they are being cautious. She is at full feeds now, but over an hour and a half. They will get her back to full feeds over an hour probably today or tomorrow. The doctors discovered that Haley had a blood clot in her left arm from her last PICC line she had. It appeared to be resolving itself, but they didn't want to take any chances so now she will have to take Lovenox (a blood thinner)by injection twice a day for three months. We aren't looking forward to giving her shots twice a day, but we will do what is best for her. Haley seems so much happier since she was put on oxygen and on other meds that have helped her be more comfortable. She seems so much more active since she has been back at Texas Children's Hospital. We are so grateful that Haley is doing much better and seems to be happier. We absolutely love her and can't wait to see her back home in her own bed.
As always we continue to thank the Lord for the beautiful miracles (Rachel and Haley) in our lives. They have changed our lives for good and have taught us many lessons in life. Lessons we needed to learn! Rachel and Haley have us wrapped around their little fingers. They are just so adorable! We would do anything for them. Can you tell we love them very much? Oh yes we do!