Wednesday, February 3, 2010

Improvement and healing

It has been a very busy last few days for the girls, especially little Haley. Haley has been back in the hospital for a few days now, and could be there another week or even longer. She is doing much better since they put her on Oxygen and a diuretic to get the extra fluid off. Haley is back to her true weight (8 pounds 11oz). Haley has had several specialists (pulomonologist, cardiologist, and gastrointerologist) looking at her to figure out what is going on. They have diagnosed her with pulmonary hypertension thus far. The right side of the heart was a little enlarged due to the pulmonary hypertension. The doctor did get that under control with medication and supplemental oxygen so they say her heart will be ok. The lungs will take time to heal. The gastrointerologist looked at her today to figure out what is going on with her belly. Her belly is looking much better than it did when she was at home. They still are trying to figure out why it got distended. They ordered a test called a barium enema to see if there are any strictures. She was started back on feeds, but at a slow rate to be safe. Yes poor little Haley has been through the ringer lately. We hope and pray they can figure out what is going on with her, and get her back home soon. We miss her very much at home, she brought so much joy to us when she was here with us. We cherished the week or so we had at home with her, and look forward to having her back.

Haley so tired after a long day in the NICU



Rachel continues to improve and is doing really well. It has been confirmed that Rachel did in fact have a staph infection around her surgical site. They confirmed it through skin cultures. Originally they suspected it but weren't 100% sure, but now they are. The good news is that the staph does not appear to have gotten into her blood. We are so thankful for that. Rachel is getting antibiotics to kill the infection. She is now starting to learning to eat from a bottle. Occupational therapist are working with her on that. Rachel's feeds are being transitioned to intermittent/bolus feeds instead of continuous. She is doing well with that transition thus far. She continues to grow and now weighs 9 pounds. We are hoping that once her g-tube is changed out to the g-button, she will be able to come home. That should happen within the next two to three weeks. Rachel is such a little princess, we adore her and can't wait to have her home as well.

Rachel loving her tummy time

9 comments:

  1. So glad to hear everything is going well (well better than Mon and Tue) :) Both babies are adorable and I am sure you will have them home in no time together. Continued prayers coming your way.

    Michele Wallace

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  2. These are trying times, but all life is trying. Do what you have continued to do, and that is to look at the wonderful opportunities you have and mark your life from joy to joy. Not from problem to problem.

    You are strong and you can handle all this. Frank and I continue to pray for you all, daily.

    Virginia and Frank

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  3. 分享的朋友,在精不在多,分享的幸福就在下一秒 ..................................................

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  4. So glad both girls are making progress. We continue to pray.

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  5. my precious little friends - i pray that you continue to do well...
    its hard to think of having to LEARN to suck on a bottle -- we just kind of take that for granted...
    The Lord grants us tender mercies always, all ways...
    Keep up the good work Rachel and Haley - you too, Thomas and Amanda!
    lovies to you all
    Erma

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  6. I am so glad to hear the girls are getting better. I will continue to keep them in my prayers. I found a website online that I thought you might enjoy. It is a Preemie support group where they talk about everything and share and encourage. I hope the girls will be able to be well enough to be home with you permanently. Hang in there. I am sure this is such a emotional roller coaster. Here's the website I told you about.

    http://www.inspire.com/groups/preemie/

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  7. What strong little girls and such loving parents. We are thinking of you, praying for you all.

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  8. Happy half birthday to the girls!

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  9. I'm so glad they are both doing better. We will keep them in our prayers until both are safely home!

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