For the Labor day weekend we traveled to Austin to visit Grandma and Grandpa Benedict, Thomas's family and my brother and his family. We enjoyed our time visiting with everyone as well as our time away from Houston.
My dad, my brother with my niece Ashley, my mom and us with the girls
Grandma Benedict with her granddaughters. The girls were getting their break from their helmets.
We are thinking and praying for Grandma Benedict. She had total knee replacement surgery and hope for a speedy recovery.
Our little Haley had an eye doctor appointment today. Her doctor (Dr. Carvounis) has been following her since he did her first eye surgery. He saw no changes to her right eye. Her right eye still has scarring from the surgeries and the doctor states that it doesn't look like its going to get any better. At best guess she only can see light. She will continue to wear the glasses since we don't know what she can see. Since she got her helmet we have not been able to get her glasses on. I tried using an elastic cord to hold the glasses tightly around the outside of her helmet, but that didn't work for long. The glasses eventually slipped down. Haley has also started doing eye presses. For those that don't know what this is, it's when a blind person presses on their eyes for some feedback or stimulation. This action over time is not good because it can push the eye too far back in the socket or cause more damage to an already frail eye. So now we are always watching Haley to see if she puts her hands up to her eyes. We have been moving her hand down over and over. This is going to be a long process to get her to not do this anymore. Anyone with this experience have any ideas or have done something to successfully stop the eye presses?
Not to leave out our sweet Rachel. Rachel is sick with a cold right now, but she will get better. It's hard to see her or Haley sick. Other than that she is doing good. We have not gotten glasses for her yet. We want to get them on her soon, but are hoping to figure out the whole glasses with the helmet dilemma soon.