We are loving having our little miracle girl Haley home with us. She is a handful, but she brings so much joy and happiness into our home. She likes to be held, talked to and loved. Daddy loves to kiss all over her and show his love to her. Haley has been having a hard time with reflux. Her pediatrician prescribed Prevacid. We think it has helped some, but she gets so fussy when she is fed. Haley is sporting a new look with her new glasses. We finally got them and she has been wearing them despite not liking to wear them. They are a hassle to keep on her, but she needs them to help her right eye focus and see. Seeing her with those glasses on make me laugh. She is a cutie! I think Haley has made some developmental progress since she has come home. ECI came to our house today and started the process of getting therapies for her vision impairment and OT.
Haley wearing her new pink glasses.
Rachel is doing well. Her oxygen has been decreased to 1/4 liter and she is tolerating it well. Tomorrow OT is going to start oral/motor therapy and next week let her take a bottle. We think she will do well taking the bottle because she sucks on her pacifier so well, but we will see. This is a big step for her to coming home. We have been waiting for a long time for Rachel to take the bottle. Rachel has done very well since the g-tube and fundo. As much as we really didn't want her to get the g-tube and fundo, we are glad she did because she has been making a lot of progress since. We still have not been given an idea of when she will come home, but we feel it is getting closer.
Rachel looking cute.