Rachel wide awake. She's waving hello to everyone.
Haley fast asleep after a busy day of tests.
Friday, December 11, 2009
Tests, Tests and more Tests
What a busy week it has been for both the girls. Haley had an especially busy past couple of days. She had some tests and exams done. She had an upper GI and small bowel follow through yesterday. It didn't show any obstructions or strictures like the other test showed. We are happy about this and are so glad they did this test to make sure. Her bowel surgery is still scheduled for Thursday December 17. She also had the more in depth hearing test today and it showed she has mild hearing loss. We talked to the doctor who said that most likely she has a little fluid in her ears due to being in a horizontal position since birth. We feel that her ears will clear up and she won't have any hearing loss. She had a follow up eye exam also today. Her right eye is doing ok and starting to look better. Her left eye still is not so good. There isn't any more surgery they can do to fix it. We are so grateful though that her right eye is ok. We pray that she will be able to see well enough out of that right eye to see the beauties of the world. Haley had a head ultrasound as well which showed no changes. To top it all off, she also got her immunizations today. Haley has been through a lot the past couple of days, but she handled all the tests well. She is such a trooper though she was worn out. When we visited her this evening, she was sound asleep. Rachel is just hanging out. The big news with her is that she is now 6 pounds 2 oz!!! She has finally made it to 6 pounds. We are so excited. We know that the more she grows the sooner she will be able to get off the cpap and not have to get a trach. I forgot to mention that Rachel had her follow up eye exam on Tuesday and her eyes are doing well. No problems there. Rachel should be getting her hearing test soon.
Rachel wide awake. She's waving hello to everyone.
Haley fast asleep after a busy day of tests.
Rachel wide awake. She's waving hello to everyone.
Haley fast asleep after a busy day of tests.
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what busy babies they are! such brave little soldiers in the army of life!
ReplyDeleteso glad no problems with getting Haley reconnect surgery. She is such a sweetheart. soon she'll be more active, hearing might improve, she's gonna be just fine!
that Rachel! she is so smart, waving at us at her young age! Hi to you darlin'
Love to you from icy Midvale ---
Erma
I love reading your blog. What blessings your girls are. Thank you for sharing your journey; it is truly an inspiration to me.
ReplyDeleteI always look forward to your updates! I am so glad to hear that sweet Haley and Rachel are doing so well - Rachel look so alert in this photo, and Haley looks like a little sleeping beauty. I will continue to pray that both make it through any rough patches and that they get to go home soon!
ReplyDeleteGod bless you all!
My daughter was so happy to see the photos of the girls today!! I'm glad to hear that everything isn't as serious as it first seemed. I hope they are able to keep Haley's surgery for the 17th, I'm sure it will be a relief once all her intestine issues handled. Little Rachel is 6lbs!!! That's fantastic news! I really hope she's able to grow stronger on her own, without the need for more surgery. Thank you, as always, for sharing your family with us :)
ReplyDeletePraying for you always,
Christina McKinney
This comment has been removed by the author.
ReplyDeleteAlthough we love to think that the babies are waving at us, it is actually a sign of being stressed when preemies do that with their hands. God knows that these babies have been stressed enough. Hopefully the path they continue on will be less stressful and more relaxing.
ReplyDeleteyou know,bridal 2008 - YOU may think its stress - WE know she is waving - they really have been stressed enough and we are all praying their path in life gets easier for them and their parents!
ReplyDeleteDon't you love it that we can share their lives in these brief glimpses? i do!
Merry Christmas
Erma
Thank you for sharing the great news! Haley will soon have her bowels reconnected and be one step closer to going home. I imagine there is not much more progress needed for her to go home. Rachel reached 6 pounds! That’s so good! : ) The pictures are so pretty! I never heard of babies waving when they are stressed… Rachel knew I was going to see this picture. She is waving at me! I love you little angels! You are constantly in my prayers and in my heart
ReplyDeleteIn defense of bridal shower, finger splaying, saluting, waving--whatever term you use IS a studied and recognized sign of stress in these babies.
ReplyDeleteOther things babies do to let us know they are stressed are apnea, bradycardia, yawning, sneezing, rapid heartrate, increased respirations, being overly irritable, decreased activity etc etc etc
Often times when a nures, pt or parent knows their babies cues they can pick up on any of these signs and put the baby back to bed to rest/recover or sometimes it's as simple as decreasing the noise and light levels in their enviornment. not always easy to do which is why i'm a big fan of private rooms in the NICu.
good to know! thanks! i still like to think she is waving! ;-)
ReplyDeletegood news on Haleys hearing test and Rachel is gaining weight fast now. Thanks for taking the time to share you wonderful story with us.
ReplyDeletePraying for God's healing on your little beauties. May they see and hear all the wonders of the world. May they be home with you soon.
ReplyDeleteI hope and pray that Rachel and Haley can go home soon and get to relax all day long. I never knew that finger splaying was a sign of stress, I recall my infants doing this as well.
ReplyDeleteYeah, I have to agree with Bridal Shower. She is not waving - she is a premature 4 month old, so obviously she doesn't know how to wave. It might look cute - but by the shocked look on her face and the splayed hand - she is startled. But this is not abnormal for a baby of her prematurity.
ReplyDeleteI look at these girls and wonder how Michelle Duggar's baby is going to do - she was born at 25 weeks and is 1 lb 6 oz. Bigger than these girls were, but I can imagine that she will face the same challenges. It is amazing, really, how much medical science can do for these little ones!