We are so proud of Haley! For the first time today, she drank formula from a bottle. She took 7 cc's and did really well for doing this for the first time. The occupational therapist will continue to help her as she progresses to being able to take all her formula by a bottle. The other big news of the day is that the MD's took Haley off the nasal cannula today, and she has done just fine thus far without any extra oxygen. Haley's surgery is still scheduled for Thursday and she will be intubated for that of course, but we hope she will be able to get back to where she is now soon after the surgery. Haley's weight today was 6 pounds 6oz. Haley is such a sweetheart. She does so well with all the challenges she has been facing. We love Haley so very much and are so grateful to be able to enjoy everyday with her and to see her progress so well.
Haley before her nasal cannula was taken off
Haley the chunky monkey
Rachel has had a great day today as well. She continues to move forward with her progression. Tonight I was able to hold Rachel and almost the whole time her CPAP prongs were not in her nose. Surprisingly she did well and her oxygen sats stayed up in the 90's for a good 45 minutes, but then she had to get back on her CPAP as her oxygen sats started to drop. We will give Rachel about another month to see if she can gain enough weight to where she out grows the floppy airway, and see what her reflux situation is. We will make a decision then about the trach and a g-tube/fundo. We hope more than anything else that she just needs a little longer to out grow these issues. We will implore the Lord for his help and guidance. Rachel is growing. She is up to 6lbs 7oz. She has passed Haley up by 1 oz. Rachel has such a strong feisty spirit about her. She is a fighter and we know she will get through these challenges she is facing as well. We love her so very much!
Mommy holding Rachel without her CPAP on
Rachel getting a break from the CPAP. She is loving it!!