The girls have had a good weekend. Haley was able to come off the ventilator yesterday, and be put back on cpap. Haley seems to be having a difficult time with the cpap. Not that she isn't tolerating it, but that she can't stand to have it in her nose. I can only imagine how annoying it must be to have air constantly blowing in my nose. She has had some set back with this surgery. She is back on TPN along with feeds and her cpap settings are higher than when she initially went on it. We hope she will get back to where she was, but she will be having another surgery in December to have her small intestines reconnected so she will probably be set back again. Hopefully she will be able to recover quicker next time since she will be older and bigger. We also hope sometime this week we can get her back with her sister at The Woman's Hospital of Texas. Haley will have her eye examined by the pediatric ophthalmologist surgeon on either Tuesday or Wednesday to see if any more surgeries are necessary. If all is well with her eye she should be cleared to be transferred back.
Haley not liking the cpap. Texas Children's Hospital uses a different cpap than Woman's and I think Haley is having a hard time adjusting to it.
Rachel has been doing really well the past week. She has steadily been weened down on her cpap settings in preparation for tomorrow. Yes tomorrow they are going to take her off the cpap and try her on a nasal cannula. We are so excited for this to happen. We hope and pray she will be able to tolerate the nasal cannula. I think she will definitely enjoy the nasal cannula much better than the cpap. Like Haley I think Rachel can't stand the cpap. It seems to annoy her as well, but it has served its purpose.
Finally got a close up shot of Rachel with her eyes open (at least one eye). She doesn't like the camera flash at all.