|Haley and Rachel|
Rachel has caught up well on her growth. She weighs 28 pounds (25-50% ile) and is 33 inches tall (5% ile). She is doing well with her walking. Rachel has not said any words yet, but is learning sign language. She has learned to sign "more". Her speech and hearing teachers are working on other words as well. We continue to work on her eating. It has been a very long frustrating challenge and it will continue to be a challenge to get her to eating 100% by mouth. Rachel puts some finger foods in her mouth and chews the food, but she continues to spit the food out without swallowing much at all. She still gets fed 100% through her g-tube. Rachel is a very determined little girl. She does not give up when there is something she wants. Rachel likes to look at books and puzzles and has started becoming interested in watching children's TV shows (Dora, Sesame Street and cartoons). She also loves to look at children's apps on mommy's ipod. She is a beautiful princess.
Haley's growth is still slow, but she is growing at her own pace. She weighs 21 1/2 pounds (<5% ile) and is 28 inches tall (<5% ile). Haley will be seeing the endocrinologist again in June. We will decide then to do the growth hormone shots or not. We have been working on getting Haley to eat more to see if it will help her growth. She is eating larger quantities now so hopefully that will help. I really think Haley is just going to be a petite person. Her daddy was little as a child. With Haley's speech, she sometimes says "mom", but I'm not sure if she knows what she is saying. She says it at random times even when I'm not near her. Haley is a fun loving, stimulation seeking little girl. She loves to jump, play and go outside. Haley also likes looking at the children's apps on my ipod. She most likely doesn't see the detail in the apps, but she sees the light, movement and colors. Haley is a sweet little sensitive girl.