This past week was busy. There was something going on almost every day. I am so grateful that my mom (the girls grandma) has been at our home with us to help out. I will miss her when she leaves on April 22. She has been helping me out when the girls have their doctors appointments. This past week both Haley and Rachel had an appointment. Haley went to her retina specialist. There has not been any changes to her right eye. Which to me is not good. I was really hoping that her right eye was looking better since Haley does respond to sunlight. We won't know what she sees until she gets older and is able to tell us. Her eye doctor thinks she won't see anything more than shadows. We are staying hopeful that she will be able to see more. Only time will tell.
Haley enjoying her swing
Rachel saw the pediatric ENT. The doctor looked at her vocal cords and saw that one of her vocal cords is still paralyzed. The doctor said it could take a year from when she had the PDA surgery for the vocal cord to start working again. If it doesn't start to work again its not the end of the world. Her other vocal cord can take over and she will be able to speak and eat. We think its already taking over since Rachel sounds better to us than in the past. Rachel also had her OCRG test which is a 4 hour test to see how she oxygenated while asleep and awake. She did ok when awake, but once asleep her oxygen sats went too low so she will continue on the oxygen. She will have this test done again in 4-6 weeks.
Rachel sleeping. She looks so peaceful.
Rachel had a very special visitor. Cathleen, one of her primary nurses at Woman's hospital came to visit her. It had been a little while since she has seen Rachel. She missed her so much. She loved seeing her and holding her.
Cathleen and Rachel