Another busy week just about over. What a week it has been. The girls had several doctor appointments on top of discouraging news and sickness. Also grandma went back home. We love and miss her.
Grandma holding her granddaughters. She sure does love them!
Haley is a superstar! She had the OCRG test this week and she passed with flying colors and is off oxygen. We are so thrilled that she is doing well in regard to her lungs. It has been nice that she is down to only one tube attached to her. Its great getting to walk around with her through out the entire house. Yeah no more oxygen tubing! Unfortunately we didn't get a good report after she had her ABR (sedated hearing test). We were told she has severe hearing loss in both ears. Supposedly the problem is fluid behind her ear drums. Haley is scheduled to see an ENT doctor in a couple of weeks to see if they can figure out what is going on behind her ear drums and get treatment to improve her hearing. She will most likely need hearing aids no matter what. Haley has developed quite a personality. She makes me laugh with the cute things she does. She is progressing with the therapy she has been getting through ECI. Unfortunately she has not rolled over yet, but she is making improvements in other areas. Haley is smiling more and it just melts my heart. Haley has made improvements in the amount of formula she takes from the bottle. She is now taking 1 1/2 - 2oz. Doesn't seem like a lot, but this is good for her. We look forward to getting that tube out of her nose sooner than later. I love it when she does something so simple that she has not done before. It's the simple things that matter the most. I just wish and hope the best for her and that she will be able to hit all milestones. She is way behind in meeting them, but in her own time she will meet them.
Haley sitting in the Bumbo chair
Haley and her cute pouty lip. She makes me laugh whenever she gets upset and that lip drops.
Rachel is sick with bronchial pneumonia. The girls were doing so well at staying healthy, but I knew eventually that one or both would get sick. Rachel is on an antibiotic and seems to be getting better only after 2 days of it. Earlier this week Rachel had a follow up visit with the ophthalmologist (Dr. Coats) and got a good report. Her eyes are doing well and she doesn't need glasses at this point. Rachel is growing well and is just about 15 pounds already. She is also making progress in different areas with the help of ECI. Rachel is such a beautiful little girl. It melts my heart to see her smile.
Rachel in the Bumbo chair
The girls together