The girls are doing well. Haley had her follow up eye exam on Wednesday and the news was good. The doctor said that he was optimistic that Haley will have some vision in her right eye. To help her have some vision, she will need to wear glasses designed for infants. We were given a prescription for infant glasses and I ordered them today. They will be ready in 2 weeks. I have never seen glasses so small! I chose some cute pink ones. She will look cute with them on. Haley continues to do well in level 2. She is still getting the bottle 2 times a day. She still isn't taking a lot of formula per bottle (4-10cc at one time). It's going to take her awhile to get to the point of her taking all her formula needs from a bottle. She will go home on a nasogastric tube while she continues to learn to take a bottle. Thomas and I are going to have to learn how to place the tube should it come out. I'm nervous about it, but will do whatever it takes to get her home. It may be another 2 weeks before Haley comes home.
Haley loving that pacifier.
Rachel is doing well. Rachel is still on the nasal cannula and the doctor feels she is doing well on it. She is on 3/4 liter of oxygen which is a lot and she won't be able to go home on that much. Her airway needs to continue to get stronger and her oxygen needs need to be lower before she will be able to come home. We don't know how long that will take. Rachel had to repeat a test to check her reflux. We are waiting on the GI doctor to give us the results. Most likely the GI doctor will place a g-tube in Rachel in order to get the feeding tube out of her nose and make feedings easier and better for her. Rachel won't be able to take anything by mouth yet since she is at high risk for aspiration. She continues to suck on her pacifier really well. We are so grateful for that. With her sucking on that it will keep her oral motor skills going.
Rachel has discovered her hands and fingers. She has been putting them in her mouth.
This is what has been going on with the girls lately. They are so beautiful! We love them so very much and are so grateful to have them in our lives. Yes it is hard to not have them at home and to see them go through so much in their young lives, but they are truly miracles who are suppose to be here to enrich our lives. Rachel and Haley are teaching us. They are teaching us love, faith, trust, hope and to never stop believing. Never stop believing in miracles and in our Savior Jesus Christ. These challenging times will end even though it doesn't seem like it at times, but Rachel and Haley will be home one day and they will fill our home and our lives with so much joy, happiness and laughter.