tag:blogger.com,1999:blog-9145471442079731509.post625155313537238680..comments2023-12-13T07:30:35.384-06:00Comments on Stansel Journey: Eye SurgeryAmandahttp://www.blogger.com/profile/17686734314850926180noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-9145471442079731509.post-58696940190447547232009-10-22T07:32:16.844-05:002009-10-22T07:32:16.844-05:00More needless complications that might have been a...More needless complications that might have been avoided if you had taken the doctors' advice. <br /><br />Those poor babies. I've worked with preemies for years and I know that sometimes you can't avoid these things. (I was a preemie as well.) But many times- you can! I can't help but think of all the needless suffering these kiddos have gone through. Night after night in an isolette instead of mommy's safe tummy or safe in her arms, surgery after surgery, being intubated (if you think that doesn't hurt- you try living that way for 2 1/2 months), wires, IVs...<br /><br />It just makes me so sad.Heatherhttps://www.blogger.com/profile/02169480353363194541noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-74948247577584987552009-10-21T18:48:59.467-05:002009-10-21T18:48:59.467-05:00Both my boys had the ROP surgery. I can't reme...Both my boys had the ROP surgery. I can't remember all details of it. I know they were both stage 3 I believe. My daughter came home from the hospital the day before their surgery. So had a lot on my plate at the time and that it has been over three years can't remember much. Both boys were fine with their eyes after the surgery. Maddie had stage 2 but didn't need surgery as they corrected them selfs but earlier this year she did have muscle surgery on both eyes due to they started crossing basically over night. We tried glasses and also eye drop in her good eye trying to make her bad eye stronger. Neither of them worked but the eye surgery did. I also remember getting so excited when they started pooping and praying for the longest time that they would poop. I think Maddie had her ostomy a good week before she started pooping. I will be saying my prayers for you guys.Jaclynhttps://www.blogger.com/profile/04154671577928172651noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-41019967784856170282009-10-21T18:45:53.904-05:002009-10-21T18:45:53.904-05:00I know God is looking after your girls and Rachel ...I know God is looking after your girls and Rachel will do just fine tomorrow. happy to hear Haley is improving. YOur blogs are such a wonderful testimony to your faith thank you for continuing to write them.shelhttps://www.blogger.com/profile/17042796981567409081noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-38827643676871094052009-10-21T18:03:22.461-05:002009-10-21T18:03:22.461-05:00i just love Claudia and Christina you are so sweet...i just love Claudia and Christina you are so sweet!gramhttps://www.blogger.com/profile/17068162248740883410noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-10646921005544483092009-10-21T12:17:51.928-05:002009-10-21T12:17:51.928-05:00My daughter (a 25 weeker) had ROP surgery 3 weeks ...My daughter (a 25 weeker) had ROP surgery 3 weeks before discharge. Looking back it was a piece of cake but I know how you feel. She'll be fine!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-46885058566262004552009-10-21T09:28:57.084-05:002009-10-21T09:28:57.084-05:00Good job Haley!!! Dr. Coates is an EXCELLENT doct...Good job Haley!!! Dr. Coates is an EXCELLENT doctor. Rachel will be in the best hands possible! Glad to hear everything else is going well!Trixabellehttps://www.blogger.com/profile/02573058694171581515noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-76769613562396288682009-10-21T08:43:44.788-05:002009-10-21T08:43:44.788-05:00Good job Haley (lol)! Rachel, you will be just fin...Good job Haley (lol)! Rachel, you will be just fine! Amanda and Thomas, don't worry too much about ROP/laser surgery. This is very common and easily resolved. Little Rachel will do great. All my love, ClaudiaClaudiahttps://www.blogger.com/profile/06777505376889205171noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-61652743998427713712009-10-21T08:42:36.557-05:002009-10-21T08:42:36.557-05:00Dear Amanda,
Dr. Coats is an outstanding pediatri...Dear Amanda,<br /><br />Dr. Coats is an outstanding pediatric ophthalmalogist. He did our son's eye surgery as well. He has a great deal of expertise in ROP. It is a wonderful blessing for you that she only has Stage 3 ROP considering her prematurity at birth. I wrote you yesterday about my twin daughters who were 13 weeks early in 2006. My son was right on time but has struggled with vision issues. You are in great hands with Dr. Coats.Elizabeth Kinghttps://www.blogger.com/profile/07682509670557503737noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-80155200201924460732009-10-21T08:34:00.497-05:002009-10-21T08:34:00.497-05:00I've followed your blog and posted periodicall...I've followed your blog and posted periodically when I hear about your babies going through the same things mine experienced. Once again, that is the case here as my micropreemie twins (23w5d) both had ROP. My son had two laser surgeries in each eye and my daughter was expected to need it but made a sudden improvement and ended up not needing it. They both have okay vision now. My son started wearing glasses when he was 2 years old and my daughter started a few months ago at 3.5 years old. My kids also both had ostomies (with Dr. Bloss) and the other complications Haley and Rachel have encountered, and they didn't get to come home from the NICU until a month after their due date, but they are now healthy kids. It won't be long before you're able to same the same about your little miracles.Courtneyhttps://www.blogger.com/profile/04413100695399184954noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-14485901276402511512009-10-21T07:30:01.981-05:002009-10-21T07:30:01.981-05:00My girls also have ROP - my one Noel has stage 5 R...My girls also have ROP - my one Noel has stage 5 ROP and i just found out last week both retinas are completley detached now - but she is amazing anyways - my other daughter her twin - had ROP stage 3 and the surgery worked great for her - she is all over the place. Noel had a rough start too well all three of mine did - lil Evey went to heaven - and Noel had the NEC- PDA, 6 eye surgeries - and so much more - but she is here and living proof that God, see's all. Good Luck lil Rachel with your surgery.blondiefrommdhttps://www.blogger.com/profile/11203461028328779326noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-80496238646140095872009-10-21T07:14:03.394-05:002009-10-21T07:14:03.394-05:00Lol, it's so great to be happy about poopy dia...Lol, it's so great to be happy about poopy diapers!!! I'm so glad to hear they've started breastmilk feeds again for Haley, that's a good sign! I pray that little Rachel's eye surgery goes well. It seems like a standard procedure, so I'm sure everything will go according to plan. Your girls are getting closer each day to coming home with you, how exciting!!!<br /><br /><br />Praying for you always,<br /><br />Christina McKinneyChristina McKinneyhttps://www.blogger.com/profile/15923324504641844369noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-756607266127677042009-10-21T06:33:59.976-05:002009-10-21T06:33:59.976-05:00How much more can these babies endure? They have g...How much more can these babies endure? They have gone through so much. It seems like everyday there is a new issue. I totally understand what this family is going through as I had two extremely early preemies in the NICU at two different times. I guess lucky for us their path was not as bad as these babies. Somehow it does not seem right that they are still somewhat suffering. They turn about for them needs to come soon.CP Momhttps://www.blogger.com/profile/10061932923362946113noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-28637390382621496662009-10-21T01:17:41.137-05:002009-10-21T01:17:41.137-05:00Great to hear that little Haley's ostomy is wo...Great to hear that little Haley's ostomy is working! Way to go! We waited for almost four weeks (and had 2 surgeries in between) before our daughter's ileostomy started functioning. The current treatment for ROP is very good so I am sure both girls will be fine in that regard.Annhttps://www.blogger.com/profile/11379787352492934636noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-75826426934985972552009-10-21T00:59:29.666-05:002009-10-21T00:59:29.666-05:00My son, at 2 months old, had the ROP laser surgery...My son, at 2 months old, had the ROP laser surgery this past February while he was in the NICU. He developed ROP Stage 3/Zone 2 with early Plus disease in both eyes. The surgery seemed quick and he was back to his little self the very next day. Five days later and his ROP was officially regressing.<br /><br />He also had ostomies, but never pooped before his intestines were reconnected (He had an additional blockage as we would later find out.) - he was on TPN the entire time between the 2 disconnect/reconnect surgeries.<br /><br />I haven't read too many of the comments you've received on this blog, but I hope and pray you don't get many "haters" posting their opinions about how you should have handled YOUR pregnancy and planned YOUR family on your blog. Let it roll off your backs... you guys have been through enough already.<br /><br />Hang in there, and be strong for your little girls. You both are doing a great job!Aimeehttps://www.blogger.com/profile/18366858423426400133noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-24228504640912437482009-10-21T00:16:27.792-05:002009-10-21T00:16:27.792-05:00It is obvious you are strong and well intentioned,...It is obvious you are strong and well intentioned, and I understand your religious views. I have been reading every post since well before the babies were born, and I am pulling for them.<br /><br />In my opinion God doesn't punish those who choose selective reduction when faced with this situation, and I feel bad for the health problems these babies are going through. I know they'll flourish, on their own schedules. But it does make me sad, they've been handed a rough start in life.<br /><br />Please don't read this the wrong way, I am very much in awe of your faith and hoping for the best. But every time I see you have written a new post, my heart skips a beat. I say "oh please let them be okay, what now?"<br /><br />I am sure you must feel the same, whenever they have a new test administered, or a new scan, or a new examination.Robinhttps://www.blogger.com/profile/00485991889658888917noreply@blogger.comtag:blogger.com,1999:blog-9145471442079731509.post-9042046261639947452009-10-20T23:52:30.819-05:002009-10-20T23:52:30.819-05:00Little Rachel really didn't need that! i know ...Little Rachel really didn't need that! i know she will be just fine. you have a great doctor and its good that they caught it now and that there is a remedy..<br /><br /> Haley darlin' you just keep up the good work! so glad you get breast milk! my daddy used to say that it cured all kinds of problems! (He was born in 1892 - been gone for 21 years) he was so proud of mama for nursing all eight of her babies.. and it runs in the family.<br /><br />Rachel, bet your mom never looked forward to poopy like this before!<br /><br />thank you for sharing your precious little girls and their adventures with us. you know your family is pretty large now, don't you ;-)<br /><br />love you all!! Erma, Midvale, Utahgramhttps://www.blogger.com/profile/17068162248740883410noreply@blogger.com